Secondary Use of Healthcare Data

Junior Research Group

Our Mission

Making healthcare data available for research that benefits patients.

Identify data users' needs

Define ELSI constraints

Enable lighthouse projects

 

 

Motivation

Our group focuses on improving research opportunities and patient care through IT solutions. These are intended to enable the exchange and use of data from patient care, clinical and biomedical research across the boundaries of institutions and locations. Existing expertise and current research results can thus be made available in medical research. One of the goals is to identify scenarios (use cases) for the use of medical data by external partners. After clarifying ethical, legal and social aspects (ELSI), lighthouse projects are identified, proposed to data owners and assisted in technical implementation with the aid of IT tools. The BmBF-funded group is embedded in the German Medical Informatics Initiative and part of the Smith Consortium.

Team

Sylvia Nürnberg PhD

Junior Research Group Leader

Prof. Dr. Frank Ückert

Institute Head

Sofija Engelson

Data Scientist

John Ollhorn

Software Developer

Qirui Zhu

Data Scientist Intern

Ely Nova Silaban

Legal Specialist

Events

Launch Workshop

 

23.06. - 24.06.2022



Experts in the field gather to identify obstacles and find solutions to the use of healthcare data for biomedical and pharmaceutical research.
The focus lies on enabling the use of data to benefit patients.

 

Find out more...

Contact

Do you have questions or suggestions? Please feel free to send us a message via our contact form:

Project Coordination

Sylvia Nürnberg PhD
Junior Research Group Leader
Institute for Applied Medical Informatics
University-Hospital Hamburg-Eppendorf

Phone Number:

+49 (0)40 7410-57698

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UKE

Since its foundation in 1889, the University Medical Center Hamburg-Eppendorf (UKE) has been one of the leading hospitals in Europe. By networking medicine, research and teaching, all UKE employees work hand in hand for a common goal - the health and well-being of our patients. We research for them. We teach for them. For them, we are constantly learning. With around 14,100 employees, the UKE is one of the largest employers in the Free and Hanseatic City of Hamburg.